Feb 1, 2009

These guys are amazing

Davis stayed stable throughout the night last night! The team gives him fluid boluses to help control his blood pressure, and they seem to be working. We stayed with him until around 12:30 last night, just sitting with him and sending him all our love and positive thoughts. We can't make noise around him or touch him, and he is still on minimal stimulation with the big headphones and eye mask. Despite all this, we really believe he can sense that we are there. We are so incredibly lucky to be his parents. He is such a special baby. I never knew you could love something so much. 

The NICU team is amazing beyond belief. If I ever had any doubts about our decision to have Davis at Duke, they have completely evaporated. Yesterday Dr. Goldberg, the medical director of the NICU, came in on his day off to care for Davis. Last night Dr. Goldstein, the neonatologist, slept at the hospital instead of going home because she wanted to be nearby in case he had another bad night. These doctors and nurses save our son's life multiple times a day, and care for him so thoroughly on what is literally a minute to minute basis. There is never a time when someone is not there monitoring him and making adjustments to make him as comfortable and stable as possible. We can feel how much they truly care. I am in awe of their level of skill, patience, and compassion. Because of them, we know that Davis is going to come through all of this. 

If you have a prayer circle at your church, please put Davis on your list. Send his blog to as many people as you can. If you don't pray, send positive thoughts his way. We believe in the power of thinking positively, and we want as many people sending him love as possible. 

-Mom

13 comments:

jess said...

Rachel & I have been keeping up with your journey and we want you to know we are sending LOTS of good thoughts your way! You two are AWESOME parents already and Davis, well, he is just plain AMAZING...and cute!!
Hope each minute passes with continued growth and progress!
All our best,
Rachel & Rachel's mom (Susan)

Brad, Kellie, Lucy and Baby Carter said...

Sending you all the prayers, positive thoughts, indian happy dances etc that we can think of. It absolutely works; we are living proof of that. You are on Davis time now. Like it or not, he's boss....and will be for another few years, so get over it :)

God bless Dr. Goldberg and his staff. They truly are angels to us. They literally saved Carter's life and he would not be here without them. This was not just a job to them. Many of them, especially Drs. Goldberg, Horowitz, Benjamin and Izat, and ALL of the nurses took us in and made us feel like family. I still get choked up thinking about everything they have done for us..and probably will for years to come.

In a few weeks, you guys will be calling us, frustrated that Davis won't take the bottle. Until then, hang in there. Enjoy every second you have with Davis and rejoice in every small improvement. Eventually, he will get there. EVERYTHING WILL BE OK.

Michael said...

YES! YES! YES! YES! YES!
How amzaingly wonderful... Your friend Susan (above) is right - You two are incredible! Not as much for just what you do, but more for how you do it with so much love. And Davis... Well, he's one lucky guy and looking real, real good. I'm thinking he's going be a finger picker for sure...

I am so grateful to have your family in my life. I will keep up my prayers (daily for some time now), and will get you on the prayer list from my Church today.

Blessings,
Michael

theparkerreesefoundation said...

There are no words to describe what the Duke medical staff means to us and our family. They are amazing!!!!

We are praying faithfully for Davis and have added him to our pray list at church.

If you need anything please do not hesitate to call us.

It was such a pleasure meeting your families yesterday. They are great people!!

The Vierig's said...

It is truly amazing the love you can have for your little one...being a mom of a CDH baby has changed me forever as a person, but especially as a mom. It changes your perspective on life and you learn to truly enjoy and cherish every little miracle that comes your way. That little baby is all that matters in the world at that moment...he definitely knows you are there and we too believe that they thrive off of your positive thinking. Keep it up! He is kicking butt already. In our prayers for sure!

Anonymous said...

I am a follower from Baby Carter's blog,and not am following your sweet baby and praying for his return home to your family! Our prayers are with you all!

Lana said...

Dear Lindsey and Mike,
I Just read all about your wonderful day of your baby Davis birth. I,ve been praying for you all ever since Katherine told me of his CDH. All i can say is he is a beautiful baby.and you are a great couple and I will continue to pray and put you on a few prayer list. LOVE to you all and tell Davis,s nurse to keep up the good work-from one nurse to another. Much love and prayer.
Ann (Lana,s Mother)

Fer said...

Many, many prayers your way!
Fer

Tracy Meats said...

Many prayers, positive thoughts and positive energy for baby Davis!! Keep fighting little boy and amaze your mommy and daddy!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Elizabeth said...

Adding updates to the Thoughts and prayers list right now and I've been keeping you all in my thoughts, prayers and sending Sir Davis LUNG FUNCTION chants...

Anonymous said...

i just want to congratulate you on the arrival of baby Davis. you have unfortunately seen the roller coaster ride that comes with CDH but i am praying for your boy and hoping that his road can be a smooth one from this point on. you are in good hands. LUNG FUNCTION CHANTS to Davis!!!
Joanne(mom to John Michael R-CDH 3/11/07)

Dawn at CHERUBS said...

Davis and all of you are in our prayers. Duke is amazing - I spent 10 months there with my cherub. Many of the staff are like family to us now.

If you need anything, please let me know! I'll be at Duke later this week or early next week and maybe if Davis is stable and you can get away for an hour or two I can drag you out to lunch to give you a break from cafeteria food.

Please call anytime! I am in Raleigh so I'm just down the road!

Dawn Williamson
President & Founder

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
http://www.cdhsupport.org
http://www.cdhresearch.org
919-610-0129

Josiah Bancroft said...

Katie sent an email about Davis and y'all. Just wanted you to know that we are praying for him and you both.
Josiah Bancroft
Grace Community
Mills River, NC