Feb 6, 2009

Play date!


Davis' friend Carter came to visit today. It was so wonderful to see him for a lot of reasons. His parents have been so supportive and kind to us, and it really gave us a lot of hope to see Carter doing well. Only a few months ago, he was where Davis is now. It was also good to see them because we got to hold Carter! It has been killing us that we can't hold Davis- so much so that Carolyn has been contemplating asking random women in the hospital nursery if she can hold their babies. Just kidding, but it was nice to get some baby time. We can't wait for the time when Carter and Davis can hang out and play and just be normal kids. 

It was a little frustrating today in the NICU. They're doing construction (which is really loud) and Davis had a lot of supports weaned. The most disconcerting thing is that they chose to do all of this weaning without one of his regular nurses present. We did voice our concerns and hopefully that won't happen again. Everything ma
y be different tomorro
w depending on how he tolerates changes over the night, but as of now his epi (blood pressure medicine) is the lowest it's ever been, his oxygen has been reduced, they took away the paralytic (which means he can finally move around), and they weaned the vent pressure slightly. It was a big day, and so far, so good. He still has a long way to go, but his progress is amazing. Every day, we get a little closer to surgery. 

Nurse Lauren signed up to be one of Davis' primaries tonight. She took care of Carter, and we are so glad that she is on Davis' team. All of his primaries are wonderful. They really know Davis better than the doctors, and are his constant advocates. We
 are so grateful to have them. 

Today, we were talking about the hidden blessings in our situ
ation. One big one is all the love and support we've gotten. Difficult times can really bring out the best in people. Because we have Davis, each other, and the support of our families and friends, we truly feel like the luckiest people alive. Thank you.

-Mike & Carolyn

6 comments:

Brad, Kellie, Lucy and Baby Carter said...

Love reading updates like this. That kid is just buzzing right through this CDH stuff. I'm sure it doesn't seem like it sometimes, but Davis has made SO much progress over the past week, it's amazing. Great seeing you guys yesterday. AWESOME pics of us and Carter! And you will be in fantastic hands with Lauren and the other nurses. We love them and miss them so much (but they're going to have to come to New Bern to see us, not the other way around! haha). Davis will become their little buddy and they will protect him from the wolves.. ;)

Alex & Ingrid Houchin said...

Great to see that Davis is doing so well. Enjoy the moments when he starts to wake up. I remember Alex and I staring in amazement for hours when Alina started to move one finger. We are hoping that Davis will continue to remain stable so that the docs can perform the surgery soon.
All the best,
Ingrid, Alex & Alina

Tracy Meats said...

Wonderful to see that Davis is making those steps towards his surgery and doing so well. He has made wonderful progress! Many continued prayers for Davis. Sending him lots of positive thoughts and energy. I hope you get to see him move very soon and even open his eyes!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Owain's mommy said...

Graet do hear Davis is moving in the right direction! Keep up the good work Davis!

Amber

Anonymous said...

Mike and Carolyn, a huge part of Davis' success is attributed to the parents he has. Make no mistake, even at his age and with all of this, he KNOWS you are there and he is doing his best for you both.

Shane said...

Glady Branch Baptist Church is praying for Davis. Psalms 121: 1,2
says: I will lift up mine eyes unto the hills, from whence cometh my help. My help cometh from the Lord, which made heaven and earth. May God Bless all three of you is our prayer.