Mar 16, 2009

Home Sweet Home





Our internet finally works again! Sorry for the long delay in posting. We live in a small town and it's taken the internet folks until now to straighten out reconnecting our service. 

Last Tuesday, Davis was discharged after 40 days in the Duke NICU. Nurse Shanda and Nurse Lindsay were there to see him off, and as you can see in that first picture he wasn't all that sure what to think of the whole situation. It was bittersweet in so many ways to leave. While we got off easy by CDH standards, those 6 weeks felt a whole lot longer. We miss his nurses SO MUCH and want to especially thank Shanda, Yvette, Lindsay, Jennie, Lauren, and Amber for everything they did for Davis. 

Before we left, we took Davis to Parker's House to pack up a few things. It was surreal to see him there, where we spent so many nights thinking and worrying for him. We drove home, where my mother and sister in law surprised us with a spotless house, a crockpot full of chili, and lots of baby goodies including a beautiful crib. It was so good to be home. 

Davis continues to progress with his feeds, and he's done much better since we got home. The last several days he's taken between 40-55 cc's from a bottle (his total feed is 66). Today, for the first time, he took the WHOLE THING! He is pretty zonked after all that hard work, but it was very exciting for us. We're still celebrating! He doesn't wake up for feeds at night, so we don't try a bottle then, but hopefully he will as he becomes stronger. I plan to ask our pediatrician about that on Wednesday. We need Davis to take all his feeds from a bottle so we can avoid surgery for a g-tube. I feel totally confident he'll get there. 

There's no place like home...

22 comments:

Craig and Kristi Kuehl said...

Congratulations!! Davis's journey has been such an inspiration...you guys should be very proud of your little man :) I can imagine it is really great to finally be home and have Davis there with you. Continued prayers for more success with the feeds, but I know he will do it!! Continue to keep us posted...

Lana said...

I am so happy for all you!! Enjoy, Enjoy, Enjoy.

Maxton's Mommy said...

YAY!!! Go Davis!!! I've been trying to think of Maxton at home with us and it seems to surreal to think about. I know we will get there someday. I'm so glad Davis is home and I know you all are so happy. Hoping he keeps up with the feedings.. go davis, go!

Brandon said...

AWESOME! I have been waiting anxiously the last week to see the progress. Congratulations to you all.

theparkerreesefoundation said...

YAY!!!! We are so glad that Davis is home where he belongs! You all mean more to us than we could ever describe.

Thank you for sharing him with us.

We love y'all!

Noelle said...

I want to visit!!! I have to meet that little boy!!!

Love you! Hope all is well!
*Noelle

p.s. still praying :)

Anonymous said...

so wonderful to see that you have your sweet boy at home! feeding can be so frustrating but it sounds like he's getting the hang of it. enjoy getting into your routine with your little man.
so happy for you,
Joanne and John Michael R-CDH 3/11/07

The Owenbys said...

Welcome Home:)

Jaime's World said...

Welcome Home, Little Man!
What wonderful news to hear!
Enjoy all of your new toys, most importantly getting spoiled by those who love you!

Congrats to all of you!

Love,
Sheryl & Tom

Kenny and Jennifer Miller said...

It's so great to see you home with Mommy and Daddy. Congratulations and welcome home!!

Jen

Tracy Meats said...

Congratulations!!! Welcome home Davis! Many prayers that he continues to thrive at home and gets better with the bottle feeds. My little guy would never wake up for night feedings either, but we had to wake him up and get him to take some from a bottle, then the rest he didn't take, went down his feeding tube. Hope you get settled into a routine soon and so happy to see your little boy home and best wishes for a great year!!

Hugs, Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Anonymous said...

Yes! I'm so happy for all three of you. I'm so proud of all three of you.

Doug

Noelle said...

Gosh, I just keep looking at these pictures. He is too precious. I want to eat him up with a spoon!

:-D
*Noelle

Anonymous said...

Grandmother would say "Mugsy mouse says 'HOME IS BEST'" and I know you would agree:) I can't wait to be there for real hugs and kisses. You know you are in my thoughts with every breath! I love you.XOXOXOXOX
'Aunt' Catherine

The Vierig's said...

Absolutely amazing! I love seeing him home with you guys. Congrats on kicking CDH's butt! Can't wait to meet you guys...

Liz and Shane said...

Congratulations! Welcome home Davis. Praying that Davis continues to have success with his feeds.

Sue mom to Emily LCDH 1-22-08 said...

Thank you for letting me follow Davis' journey. I'm so glad he's home with you. CDH can be sooo scary, you never know how it will affect your baby. Davis has come so far so quickly, keep fighting. Although the g-tube sounds scary, it's not all that bad. But since he can take some from the bottle, he'll most likely avoid the tube. Way to go Davis!!

www.carepages.com/Emilyishere

Kristen said...

Welcome home Davis (and Mommy & Daddy)!!!

Irvin family said...

We are proud to hear that Davis is home:]

Elizabeth said...

Glad he is home and doing well - enjoy him and thank you for sharing his journey!

With thoughts & prayers,
Elizabeth

Jean ashner said...

So glad you are all home under one roof! Davis sure is a cutie! Keeping you all in my prayers!

Ashlyn said...

This is so very exciting...i've been waiting to hear all about the good news!!! He's beautiful and HOME!!!!!!!!! Can't wait to meet him=)...