Jan 14, 2009

Stomach is up

At our ultrasound today (the last one we'll have in Asheville), we saw that Davis' stomach has now moved into his chest. It can still move back below the diaphragm (I guess it's a slippery little thing), but, after weeks of stability and "no news is good news", it was hard to hear that. Prior to this, it looked as if the intestines were the only organs herniated. That's unusual for a CDH baby; they can and frequently do have the liver, spleen, and/or stomach in the chest cavity, and the fact that this wasn't our son's situation made us think that maybe Davis didn't have that severe of a case and he might have a better shot than most. 

My logical mind knows that this isn't really true, and that CDH is an unpredictable disease. Babies that have less than favorable stats can do very well, and those who have what appear to be more severe cases can do poorly. There's just no way to tell. Still, I wish that stomach would have stayed down. 

Moving day is four days away...

7 comments:

Brad, Kellie, Lucy and Baby Carter said...

Don't let it get you down. It's hard to leave these appointments when you get news you don't like. Davis will be a little fighter and kick some CDH butt!

Can't wait to see you guys.

Tracy Meats said...

Stay positive and strong for Davis . . . have HOPE for that little boy and we are praying that he will be strong and ready to fight his CDH! I see you will soon be meeting Brad and Kellie--that Carter is such an inspiration. Take care and hope the move goes smoothly.

Tracy Meats - WY and CO State Rep. for CHERUBS and mom to Ian, born with a LCDH on 4/3/04

kat said...

thinking of you as always. stay strong, davis's/ashworths! xo

Maxton's Mommy said...

Davis will be a fighter. :-) The fact that the stomach has been done before now should mean that the lungs had some room to grow (I am not a doctor but that is what I have been told). :-) Keep the faith. I know how hard it is to hear things you'd rather not but know that we are all praying for your little one.

Fer said...

I am thinking about you. Keep the chin up so your Davis feel your faith and strenght.

Fer
Mom to Juan Pablo (RCDH) and MERUBS Mexican Rep.

The Vierig's said...

You are so right, what a rollercoaster ride. Most of the time, we are glad we didn't know before that Bodee had CDH but it was complete craziness when he was born. We are so glad you guys found Jes and Ashley and Parkers House. It was such an amazing place for us and truly was our home away from home. Bodee had everything up in his chest and only spent 21 days at Duke. He was amazing and fought hard. Babies are so tough and resilient. You will be in our thoughts and prayers as your CDH journey begins. Feel free to check out our blog at vierigs.blogspot.com
-The Vierigs, parents of Bodee (undiagnosed LCDH) and 3rd family of Parkers House.

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