The eating struggle continues... his nurses these last few nights have felt that he doesn't have an oral aversion, and the reflux isn't making a significant difference either. It seems that his problem is that he just hasn't learned to suck, swallow, & breathe all at the same time. He's uncoordinated or, as they like to call it, "disorganized" in his eating. We keep working with the paci, attempting with the bottle, and trying nursing. Sometimes, he'll take some- other times, he's just not interested at all.
Nurse Amber noticed yesterday that Davis may have a small abdominal hernia (not uncommon in CDH babies). One of the surgical residents came to look at it and felt it may be that the musculature weakened with the increase in pressure when the intestines moved from the chest to the abdomen. It's something we'll just watch for now, and hopefully it will heal itself with time.
Nurse Jennie is taking her GRE tomorrow, and we want to wish her lots of luck! Jennie was Davis' first nurse- she carried Davis from me to the stabilization room, and she's loved and taken care of him ever since. Good luck Jennie, we love you!
5 comments:
Prayers that Davis learns to eat by mouth in the very near future! I know it is frustrating, for sometimes that is all that keeps a CDH baby from going home. Davis has made such great progress and hopefully soon, he will with his eating too.
Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS
Soundds just like our little guy. Didn't have any problems sucking just with the process of breathing, swallowing and sucking together. It's crazy but what finally did it for Bodee...was when he had a day of throwing up pretty bad. They got worried about his bowels so they took the NG tube out to run tests. Once he was cleared to eat again, we did it without the tube to see how he would do. It never went back in again. You just never know what is bugging them. He is such a cutie by the way!!!
I am praying so Davis learn to suck soon :)
I'm praying that Davis starts eating soon. I have all the faith in the world that he will. Can I tell you how much I love the pictures taped to the crib? They are beautiful! This picture is fabulous. He's a beauty. I'm going to be around next weekend and will call. I love you all.
XOXO,
*Noelle
That is the cutest picture I've seen all day.
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