Davis had an echo this morning, which is basically an ultrasound of the heart. It showed that his hypertension is pretty much under control, but the right side of his heart is a little oversized due to being compressed for so long. There are a few other (minor) abnormalities that we'll continue to follow with cardiology, but we hope these things will get better with time.
Yesterday I placed the NG tube for the first time, and today I did it again. Basically, I threaded a thin tube through his nose to his stomach for his feeds. He was very upset with me for a little while afterwards, but it wasn't as hard as I thought it would be. (When he gets very angry, his bottom lip quivers. It's the most pitiful thing you've ever seen). After you place the tube, you check that it's in the right place by shooting a puff of air through the tube and listening with a stethoscope for a popping sound in the stomach. It's empowering to be able to do these things for him... makes me feel a little like his nurses, whom I admire so much.
I can't believe we're so close to being home! Initially, at our consult in Cincinnati, they told us to expect to be in the hospital for 3-6 months. To be going home in just a little over a month is more than we could have ever hoped. We are so lucky.
8 comments:
Soooooo happy for you guys. Living in the same house as a miracle is very awesome, but humbling. You are SO going to enjoy all of your sleepless nights!!! :)
Woohoo Davis! So happy for you guys!
What wonderful news! I actually had a dream earlier in the week that you were taking Davis home - it was the best dream! I'm so happy for all of you and I can't wait to meet Davis.
Love to you all!
Linda
I can't believe it! This is awesome!!! I am soooooooo happy for you! I'm so proud of Davis! I can't wait to meet him, and hold him! Oh my gosh! What a great day!
I love you so much!
Keep in touch!!!
Love,
*Noelle
This is such a blessing and we look forward to having Davis and the whole family 'home' here in the mountains. I imagine it will be a little daunting at first, but Davis will continue to thrive under the care of you and Michael just as he did with those wonderful nurses.
I can't even put into words how excited I am for you. I still vividly remember the day we left with Bodee and it was indescribeable :). Congrats you guys and we are so proud of little Davis and the way he kicked serious CDH butt!!! Go Parker House Boys!!!
This is the best news ever!!!! Way to go Davis. We are so proud of you and mom and dad. Can't wait to meet you and give you a sweet hug.
Love to you all,
Jenny
WOW!!!!!!!!!! great news!!! i agree! Go Parker House Boys!!!
that is truely a miracle! prayer continue for all!
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